Care Information Exchange for children and young people
The Care Information Exchange is now available for children and young people under 18, giving you access to information about your hospital care such as appointments, clinic letters, test results and treatment plans.
Most patients aged 13 to 17 years can sign up for themselves. A parent or guardian will usually sign up for children under 13.
Please note, that the Trust has a duty to do a safeguarding check for every request to get access to a child's record. This is done for everyone. If clarification is needed, you may be asked to speak to your clinical team before access is given.
These are the steps to register for your account:
You will need:
- an email address for your username and so we can tell you when new information is added to your record.
- a document to prove your identity
Register in three steps
1. Fill in the form and book a video call using the link in the form
2. Show your ID on the video call
3. Receive an email invitation to activate your account and start using it.
If you need help, contact the CIE service desk at imperial.careinformationexchange@nhs.net
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Patients aged 13-17 |
Passport, provisional drivers licence, or a transport pass with name and photo |
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Parent or guardian |
Driving licence, ID card, or passport and a copy or photo of the young person’s birth certificate |
When you can get access
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Under 13 year olds |
Parents can have access on behalf of their children |
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13 to 15 year olds |
Parents can have access if the young person gives consent. The young person can also have access themselves. |
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16 and over |
The young person now has control over their record. They can give access to their parents if they choose |
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For young people with learning disabilities |
Parent access on behalf of the young person can continue until the age of 17. Their clinician will confirm if it is appropriate for your child to have access.
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FAQs
What if I don’t want to sign up. Will it affect my care?
No, you will continue to receive information in the way you do now such as letters by post and text reminders. The Care Information Exchange is simply a way to see all that information all together on a secure website.
Can I use the NHS login to sign up?
Under 16s cannot use the NHS login to sign up for the Care Information Exchange. Healthcare professionals have additional responsibilities for keeping children and young people safe. This means a different sign up process to the one for those aged 16 and over.
Can I be prevented from accessing my child’s record?
The Trust has a duty to make sure it’s safe for every parent or legal guardian to get access to their child's record. This is done for everyone. If clarification is needed, you may be asked to speak to your clinical team before access is given.
Can I have access to my own record as an adult?
Yes, you can gain access to your own record as well as access to your child’s record. You can get access to your own record by clicking here.
Are the Care Information Exchange and Patients Know Best the same thing?
Yes, the Care Information Exchange and Patients Know Best are the same thing. The Care Information Exchange is powered by Patients Know Best.
Can anybody else sign up to view my child’s information?
No, only the clinical team and parents or legal guardians can access the record.
Who can I contact if I have any issues registering?
You can contact the CIE service support desk by emailing imperial.care-informationexchange@nhs.net.
More information for parents
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