Imperial Health Knowledge Bank
Imperial Health Knowledge Bank
Imperial Health Knowledge Bank is a new research resource that will provide every one of our patients with an easy opportunity to be part of research and contribute to medical science. Taking part is optional and does not affect your ongoing or future care.
The Knowledge Bank is a database of patients who are willing to be contacted directly about clinical trials and studies that could be relevant for them and who have agreed for the Trust to collect and store their health information and samples for research.
Everyone who takes part also has the option to provide a blood sample, but you don’t have to do this. If you decide to give a blood sample, it is taken at the next routine appointment, requiring no additional visits to hospital.
You can read the detailed patient information sheet here.
If you consent to take part, your health information will be automatically included so you don’t need to do anything differently and you can withdraw at any time.
To join the Imperial Health Knowledge Bank or for more information, contact the team directly: imperial.healthknowledgebank@nhs.net or 020 3312 2124.
Why join Imperial Health Knowledge Bank
As a research-led NHS trust, Imperial College Healthcare believes that each of us can make a unique and valuable contribution to improving tests, treatments and our understanding of health. The Imperial Health Knowledge Bank provides all our patients with an opportunity to take part in research.
You will be contributing to a collection of health information and joining our database of people who are happy to be contacted about future health research studies.
Researchers may use your samples and information to learn more about health conditions or to help them find diseases earlier and improve care for patients.
How we will use the information
If you consent to take part in the Imperial Health Knowledge Bank:
- We will add your details to a list of people we can contact about future research studies to ask if you want to take part
- We will automatically add health data that has been collected as part of your routine care to the Knowledge Bank
- We will ask if you would like to provide a blood sample to be safely stored as part of the database for future research. You can say ‘no’ to providing a blood sample.
- Through a data access committee, we will facilitate researchers safely and securely accessing the health data contained in the knowledge bank for research studies that could lead to new treatments and a better understanding of diseases.
How to join
Please watch the video above and read the participant information sheet for detailed information about joining the Imperial Health Knowledge Bank.
If you have received a text message from us inviting you to join the Imperial Health Knowledge Bank, you can join via the link on the text.
For further questions or to join, please contact the team directly: imperial.healthknowledgebank@nhs.net or 0203 312 2124
Opting out
If you do not want to receive an invitation to join the Imperial Health Knowledge Bank, please contact the team by phone, email, or letter. If you have already registered through the National Data Opt-Out then you will not be contacted about Imperial Health Knowledge Bank and do not need to make a separate opt-out request.
Phone: 0203 312 2124
Email: imperial.healthknowledgebank@nhs.net
Address: The Bays, St Mary's Hospital, Praed Street London W2 1NY
Benefit for you
You may not benefit personally from any research carried out using your samples and data. However, the use of your samples and data may lead to the development of new drugs, treatments or tests and the results of research will benefit patients in the future.
How to withdraw
You can change your mind and withdraw your consent to be included in the Imperial Health Knowledge Bank at any time. Please contact us directly at imperial.healthknowledgebank@nhs.net or 0203 312 2124
Confidentiality
Best ethical and legal practices will be followed to ensure that all information collected about you will be handled safely and securely. Identifying personal details will never be released to researchers without your consent.
About this page
- Last updated
- Author Nadine Silverside